| 8 - 9 a.m. | Vence Bonham, J.D.
Chief
Education and Community Involvement Branch, Office of the Director
Associate Investigator
Social Behavioral Research Branch, Division of Intramural Research | The ethical, legal, social and policy implications of genomic discoveries, particularly health professionals' and lay persons' understanding of race, ethnicity and genetics. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Sarah Harding M.P.H.
Community Outreach Analyst
Education and Community Involvement Branch
Office of the Director | |
| 9 - 10 a.m. | Anthony Antonellis, Ph.D.
Postdoctoral Fellow
Genome Technology Branch
Division of Intramural Research | Genetic and genomic approaches for studying the development and diseases of the peripheral nervous system. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Gary Temple, Ph.D.
Extramural Program Director
Mammalian Gene Collection
Division of Extramural Research | Building a public collection of gene transcripts (as cDNAs) for use in studying the structure and function of human, mouse, and rat genes. |
| Andrea Kalfoglou, Ph.D.
Research Fellow
Social and Behavioral Research Branch
Division of Intramural Research | Studying the ethical, legal, and social implications of the development and use of reproductive genetic technologies and research ethics associated with social and behavioral genetics research. |
| Sarah Harding M.P.H.
Community Outreach Analyst
Education and Community Involvement Branch
Office of the Director | |
| 10 - 11 a.m. | Brian Capell, M.D.- Ph.D. Candidate
Genome Technology Branch, Division of Intramural Research
New York University School of Medicine | Studying the most dramatic form of human premature aging, Hutchinson-Gilford progeria syndrome, and its potential links to the normal aging process. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Kate Reed, M.P.H., Sc.M.
Genetic Counselor/Project Director
National Coalition for Health Professional Education
Johns Hopkins Medical Institutions
| Counseling families with genetic disorders and creating materials to help patients and health professionals assess the quality of information they receive. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Jean McEwen
Program Director
Ethical, Legal and Centers of Excellence in ELSI Research
Division of Extramural Research | Working on issues related to the ethical, legal, and social implications of genetic and genomic research. |
| 11 a.m.- Noon | Jeff Schloss, Ph.D.
Program Director
Technology Development
Centers of Excellence in Genomic Science
Division of Extramural Research | Supporting research to develop new methods, technologies and instruments that enable rapid, low-cost determination of DNA sequence, SNP genotyping and functional genomics experiments. Also supporting thetransfer of technology from developers to users, and promoting collaborative, multidisciplinary programs that closely integrate research projects at academic and industrial laboratories. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Jennifer Sloan, M.S., Ph.D., C.G.C.
Genetic Counselor
Genetic Disease Research Branch
Division of Intramural Research | Involved in Genetic Counseling, as well as studying the very rare metabolic condition Methylmalonic Acidemia, and the more common condition Neurofibromatosis Type I. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Adebola Odunlami, M.P.H.
Social Science Project Coordinator
Social and Behavioral Research Branch
Division of Intramural Research | Coordinating research projects on populations' understanding of race, ethnicity, ancestry, identity and human genetic variation and the use of these constructs in clinical decision making.. |
| Noon - 1 p.m. | Nathaniel Sutter, Ph.D.
Postdoc
Cancer Genetics Branch
Division of Intramural Research | Comparing the dog genome to the human genome in an effort to answer questions about disease in both dogs and humans. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Vivian Ota Wang, Ph.D.
Program Director
Ethical, Legal and
Social Implications Program
International HapMap Project
Division of Extramural Research | Complex traits, behavioral and community research. |
| 1 - 2 p.m. | Mary Schueler, Ph.D.
Research Fellow
Genome Technology Branch
| Comparing the DNA sequence of essential chromosomal regions from multiple primates to define functional changes that have occurred during evolution. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Barbara Fuller
Deputy Ethics Counselor
Assistant Director for Ethics
Office of the Director | Assisting NHGRI staff to meet the requirements of the statutes and regulations governing behavior of employees of the federal government. |
| 2 - 3 p.m. | Arjun Prasad, B.S.
Ph.D. Student
Genome Technology Branch | Comparing genome sequences of different animals to understand how they are related and how genomes evolve. |
| Wendy Introne
Staff Clinician
Office of the Clinical Director | Studying rare inborn errors of metabolism and other rare genetic syndromes to understand the disease process and identify potential treatments. |
| Della Brown White, Ph.D.
Postdoctoral Fellow
Social and Behavioral Research Branch | Examining social and cultural factors that may influence participation in genetics research among minority populations. |
| 3 - 4 p.m. | Aida Andres, Ph.D.
Research Fellow
Genome Technology Branch
| Studying the evolution of genes and their involvement in human disease. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Julie Sapp, Sc.M.
Genetic Counselor/Protocol Coordinator
Genetic Disease Research Branch | Counseling families with genetic conditions who participate in NHGRI research protocols at the NIH. Helping families understand the genetic basis of their condition and its inheritance and how best to cope with the medical and psychological effects of having a genetic condition. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Christopher H. Wade, Ph.D.
Postdoctoral Fellow
Social and Behavioral Research Branch
Genome Technology Branch
Division of Intramural Research | Studying how people respond to a genetic test that tells them whether they are at increased risk for developing heart disease, diabetes, osteoporosis, and several types of cancer. |
| 4 - 5 p.m. | Faith Pangilinan, Ph.D.
Research Fellow
Genome Technology Branch | Looking for genetic risk factors for human birth defects (mainly spina bifida). |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Jean Jenkins, R.N., Ph.D.
Senior Clinical Advisor
Office of the Director | Conceptualizing and developing national initiatives in the area of health professional education regarding the clinical application of genomics discoveries. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| | Phyllis Frosst
Acting Chief, Policy and Program Analysis Branch
Science Policy Analyst
Policy and Program Analysis Branch | Investigating genetic discrimination, direct to consumer marketing of genetic tests and pharmacogenomics. |
| Sarah Harding M.P.H.
Community Outreach Analyst
Education and Community Involvement Branch
Office of the Director | |
| 5 - 6 p.m. | Kris Wetterstrand, M.S.
Program Analyst
Division of Extramural Research | Working with the Sequences, Maps and Bacterial Artificial
Chromosome (BAC) Libraries Program and the ENCODE (ENCyclopedia Of DNA Elements) project. |
| Carla Easter, Ph.D.
Science Education Specialist
Education and Community Involvement Branch
Office of the Director | Creates and implements genetic education programs. Works with the branch to create science education products for high school students. |
| Dale Lea, R.N., M.P.H., C.G.C., F.A.A.N.
Health Educator
Education and Community Involvement Branch
Office of the Director | Developing genetics, health education and community involvement programs and resources, and translating genetic and genomic information for the public. |
| Phyllis Frosst, Ph.D.
Acting Chief, Policy and Program Analysis Branch
Science Policy Analyst
Policy and Program Analysis Branch | Investigating genetic discrimination, direct to consumer marketing of genetic tests and pharmacogenomics. |
| Sarah Harding M.P.H.
Community Outreach Analyst
Education and Community Involvement Branch
Office of the Director | |
