NHGRI Data Sharing Governance Committee
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:
- Promoting standard data sharing practices and operating procedures across NHGRI.
- Ensuring that NHGRI data sharing practices comply with NIH policies.
- Reviewing requests for exceptions to expectations for data sharing and alternative data sharing plans.
- Managing the regular review and evaluation of the implementation framework, making recommendations to NHGRI leadership as needed, to ensure that practices remain current and connected to NHGRI data sharing policies.
- Providing consultation for policy or practice development.
Roster
Erin M. Ramos, Ph.D., M.P.H. Co-chair
Division of Genomic Medicine
Barbara Thomas, Ph.D. (DAC Chair*) Co-Chair
Office of Genomic Data Science
Elena Valdez, M.A. Executive Secretary
Office of Genomic Data Science
Benjamin Solomon, M.D.
Division of Intramural Research
Lisa D. Chadwick, Ph.D.
Division of Genome Sciences
Rene Sterling, Ph.D., M.H.A.
Division of Genomics and Society
Mollie Minier, Ph.D.
Division of Genomic Medicine
Natalie Deuitch, M.S.
Division of Intramural Research
Kimberly Jacoby Morris, Ph.D.
Training Office
Sara C. Hull, Ph.D. (Bioethicist*)
NHGRI Bioethics Core
Sharna Tingle, M.P.H. (Senior GPA*)
Division of Extramural Operations
* The DAC Chair, GPA, and the NHGRI Bioethicist positions are standing positions
Liaisons and Committee Staff
Kris Wetterstrand, M.S. DEO Liaison
Division of Extramural Operations
Benjamin Berkman, J.D., M.P.H., Bioethics Liaison
NHGRI Bioethics Core
Laura Gorrell, Ph.D. Central Review Team Liaison
Office of Genomic Data Science
Karen Schandler. NISC Liaison
Division of Intramural Research
Last updated: March 18, 2025