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NHGRI Data Sharing Governance Committee

The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:
 

  • Promoting standard data sharing practices and operating procedures across NHGRI.
  • Ensuring that NHGRI data sharing practices comply with NIH policies.
  • Reviewing requests for exceptions to expectations for data sharing and alternative data sharing plans.
  • Managing the regular review and evaluation of the implementation framework, making recommendations to NHGRI leadership as needed, to ensure that practices remain current and connected to NHGRI data sharing policies.
  • Providing consultation for policy or practice development.

Current Roster

Appointed Members

 

Erin M. Ramos, Ph.D., MPH Co-chair
Division of Genomic Medicine

 

Barbara Thomas, Ph.D. (DAC Chair) Co-Chair
Division of Extramural Operations

 

Benjamin Solomon, M.D.
Division of Intramural Research

 

Lisa D. Chadwick, Ph.D.
Division of Genome Sciences

 

Rene Sterling, Ph.D., M.H.A.
Division of Genomics and Society

 

Ivona Aksentijevich, M.D.
Division of Intramural Research

Permanent Members

 

Sara C. Hull, Ph.D. (IRB)
NHGRI Bioethics Core

 

Executive Secretary

 

Elena Ghanaim, M.A.
Office of Genomic Data Science

 

Last updated: August 13, 2024