NHGRI Data Sharing Governance Committee
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:
- Promoting standard data sharing practices and operating procedures across NHGRI.
- Ensuring that NHGRI data sharing practices comply with NIH policies.
- Reviewing requests for exceptions to expectations for data sharing and alternative data sharing plans.
- Managing the regular review and evaluation of the implementation framework, making recommendations to NHGRI leadership as needed, to ensure that practices remain current and connected to NHGRI data sharing policies.
- Providing consultation for policy or practice development.
Current Roster
Appointed Members
Erin M. Ramos, Ph.D., MPH Co-chair
Division of Genomic Medicine
Barbara Thomas, Ph.D. (DAC Chair) Co-Chair
Division of Extramural Operations
Benjamin Solomon, M.D.
Division of Intramural Research
Lisa D. Chadwick, Ph.D.
Division of Genome Sciences
Rene Sterling, Ph.D., M.H.A.
Division of Genomics and Society
Ivona Aksentijevich, M.D.
Division of Intramural Research
Permanent Members
Sara C. Hull, Ph.D. (IRB)
NHGRI Bioethics Core
Executive Secretary
Elena Ghanaim, M.A.
Office of Genomic Data Science
Last updated: August 13, 2024