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News Release
NHGRI and other NIH institutes recently participated in the high-energy science communications contest called the Three-minute Talk.
… the ability to translate their scientific findings into plain language, further increasing the disconnect between … and Brenna Labarre - took on the challenge of using plain language principles and one PowerPoint slide to explain …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… Sample Language Aligned to Informational Elements Outlined by NIH … Considerations for Genomics Research and NIH Sample Language for Data and Biospecimen Sharing  Example 2: … could help others in the future.  - Credit: NIH Sample Language for Data and Biospecimen Sharing … Participants may …
News Release
NIH has awarded grants of more than $28 million aimed at deciphering the language of how and when genes are turned on and off.
… grants of more than $28 million aimed at deciphering the language of how and when genes are turned on and off. These … Genomics of Gene Regulation (GGR) program to decipher the language of how and when genes are turned on and off. In the … Turn On … Related Content … NIH grants aim to decipher the language of gene regulation … NIH has awarded grants of more …
News Release
NHGRI participated in a science communications contest called the Three-Minute Talk. NHGRI's Ryan Johnson came away with a first place win.
… in the finals, taking on the challenge of using plain language principles and one PowerPoint slide to explain their … Nicoli Ph.D., Cihan Oguz Ph.D., Anthony Kirilusha Ph.D., plain language principles … NHGRI participated in a science …
News Release
In an article published in the American Journal of Human Genetics, researchers have found that words scientists use to describe populations have changed from 1949 to 2018.
… Library of Medicine noted that the use of simple natural language processing programs and robust statistical tests … 10.1016/j.ajhg.2021.10.008 … Featured Research Paper … Language used by researchers to describe human populations …
News Release
Two grants will support studies on genomic literacy among Africans relating to research conducted in Africa by African investigators.
… will support a research project to understand cultural and language concepts of genomics in Nigeria. The goal is to … the researchers will develop. The new form will include language that they hope will better explain genomics terms … H3Africa, genomic literacy studies, Ehiopia cultural and language genomics concepts, Nigeria cultural and language …
The Informed Consent Resource
Examples consent forms used by genomics research projects.
… These completed forms are meant to complement the sample language found in the other sections. They are not provided … as older forms that might be useful in crafting consent language.  Note: these templates are not specifically for … These completed forms are meant to complement the sample language found in the other sections. … Examples consent …
News Release
NIH researchers discover that while artificial intelligence (AI) tools can make accurate diagnoses from textbook-like descriptions of genetic diseases, the tools are significantly less accurate when analyzing summaries written by patients about their own health.
… NIH researchers find that large language models rely on concise, textbook-like language to evaluate medical questions. … National Institutes … The researchers studied a type of AI known as a large language model, which is trained on massive amounts of …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… guidance on how to approach them. It also provides sample language to help investigators think through important … in their consent forms and how to use clear and concise language to inform participants about the risks and benefits … sharing) is appropriate. Therefore, some of the sample language below reflects wording that could be used when …
News Release
NHGRI's Stacy Desine earned first place after the finals on June 29, 2018, becoming the first postbac to win the TmT competition.
… Ishii and Haley Yaremych participated in the finals, using plain language principles and one PowerPoint slide to explain their …