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Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… which can be explored in the Genome Statute and Legislation Database . The Common Rule Published in 1991, the …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… brings an array of experience in genomics policy and legislation to the institute during a time when high profile … policy responses to potential changes in state and federal legislation; coordinated interactions with the Food and Drug …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… in these lines of insurance. Visit the Genome Statute and Legislation Database  to search for relevant state laws. The … programs. You may visit the Genome Statute and Legislation Database  to search for relevant state laws. … …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… PPAB include: Policy Issues in Genomics Genome Statute and Legislation Database … Background … How do we get there? … …
Staff
Dr. Issel Anne Lim is the Deputy Director of the Division of Extramural Operations (DEO) within NHGRI’s Extramural Research Program (ERP).
… of the Director, Dr. Lim built and supervised the Policy, Legislation, Communications, and Engagement team, overseeing …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… position statements, preparing testimony, summarizing legislation and drafting speeches. The fellow will …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… researchers; you also have people thinking about the legislation and how they can influence the decision-makers in … having had science experience to bring that to the legislation-making process. I don't have to envision what's …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
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… policy responses to potential changes in state and federal legislation; coordinated interactions with the Food and Drug …
News Release
The American Society of Human Genetics and NHGRI have teamed up to sponsor the new Genetics and Education Fellowship.