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- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genomics-Enabled Learning Health Systems (gLHS)1
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… … Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National Human Genome Research Institute (NHGRI). In her new role, she will oversee policy activities and … to the institute during a time when high profile policy issues related to the application of genomics to health and …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data … Amount of Data/Type of Study Design NHGRI finds value in and encourages the sharing of smaller project sizes that … NHGRI determined it was most appropriate to encourage the genomics community to use data sources that are explicitly …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed reorganization aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… uses. This page summarizes genetic and genomic privacy in these domains, along with information on the specific laws … of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of Confidentiality  to enable NIH-funded …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… Sheena Faherty, Ph.D. … Rapid advances in genomic research have led to a wealth of potential … curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic … bridge between scientists who know what the challenges and issues are, and the policy-makers who are actually writing …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants policy. Those interested in applying for a specific grant solicitation will find … of Health. ​ … Human Genome Project, Research Funding, Genomics Research Funding, Funding Genetics Research, NIH …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… Caroline "Cari" Young, Sc.M., first developed an interest in genetics in her high school AP biology class. "I was drawn … Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the … will bring a valuable lens to her assessment of policy issues," said Laura Lyman Rodriguez, Ph.D., director of DPCE …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… that this will not always be possible or appropriate. In addition, individual participants who do not consent to … primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. … Evolution of Genomic Data Sharing September 3, 2014  NIH issues finalized policy on genomic data sharing August 27, …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… Form to be notified about key fellowship dates. … Advances in research and their successful translation to improve health are deeply influenced by important policy decisions at the national level. From guiding research … Department on society advocacy initiatives and on policy issues related to genetics research and non-clinical …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis … broader society, the protection of research participants in genomic studies, and the integration of genomic knowledge …