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Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in comments reflect those of the author and do not necessarily reflect the official views of NHGRI, the National Institutes of Health, the U.S. …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… on genome.gov from time to time with the permission of the copyright holder. Unless otherwise noted, website … can be contacted, and what, if any, use those owners allow of their material beyond that which is stated here, please … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we support in order to advance health or …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… … Rapid advances in genomic research have led to a wealth of potential clinical applications that can benefit society. … curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic … Genome Research Institute (NHGRI) and the American Society of Human Genetics (ASHG) have joined forces to provide a …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… Welcome to the second month of 2023. It has quickly become apparent that the year is … date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy … … NIH data management policy commits to making research results available … ASHG apologizes for past harms in human …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research. … Data Types NHGRI encourages sharing of all genomic data and data types including, but not limited … technologies. Data pertinent to the interpretation of genomic data—such as associated phenotype data (e.g., …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… NIH Office of Communications … The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… high school AP biology class. "I was drawn to the puzzle of inheritance, and the inherent logic to how traits are … Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the … she completed a rotation with PPAB in 2014. "I am eager to return to NHGRI and learn more about how a government agency …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… Sheena Faherty, Ph.D. … One goal of the 21st Century Cures Act, enacted December 13, 2016, was … information that is collected from participants as part of federally-funded research. … To implement one of the law's … the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who …