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- Human Genome Reference Program (HGRP)1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
- Ethical, Legal and Social Implications (ELSI) Research Program3
- Genomics-Enabled Learning Health Systems (gLHS)1
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… medicine, from patient-provider interactions to research engagement with marginalized communities. … Online … … medicine, from patient-provider interactions to research engagement with marginalized communities. … On March 15, … medicine, from patient-provider interactions to research engagement with marginalized communities. … Event …
Event
The Ethical Legal and Social Implications (ELSI) Research Program is hosting a webinar to gather specific feedback on four potential goals for the field of ELSI research over the next decade.
… Over the previous year, the NHGRI held numerous related engagement events including town halls, meetings and … Plan. The internal working group that focused on ELSI, engagement and education issues in the Strategic Plan hosted …
Diversity Center
Meharry Medical College establishes a Diversity Center for Genome Research (DCGR) that will narrow inequitable representation gaps for underrepresented, disadvantaged minority by realizing their vision to promote African ancestry genomic research through infrastructure building and the formation of basic, clinical, and computational science research teams that are inclusive, interdisciplinary, and community-engaged.
… research teams that are inclusive, interdisciplinary and community-engaged. … Transform the organizational … and establish a social and academic network for scientific community building among basic, clinical and computational … DCGR's success in obtaining research funding. Community Engagement Core Co-Leads: Stephania-Miller Hughes, Ph.D., …
Engage
News, events and media resources related to the research and programs supported by the National Human Genome Research Institute.
Outreach
A list of high quality educational activities to engage students on DNA Day.
… genetics and genomics concepts. Units will culminate in community-focused projects. High-quality professional … Human Genome Research Institute's (NHGRI) Partnership for Community Outreach and Engagement in Genomics (PCOEG) offers the general public an …
Community Outreach
NHGRI is proud to help support the PBS documentary, “Ken Burns presents The Gene: An Intimate History,” based on the book by Siddhartha Mukherjee, M.D.
… media. It can be adapted to a variety of venues, including community centers, libraries, coffee shops, hospitals, … or researchers to serve as subject matter experts at community panels and screenings. By including these experts in engagement activities, NHGRI hopes to increase genomic …
News Release
Researchers explored patients', parents' and physicians' perspectives on the use of CRISPR-Cas9 gene-editing to reverse sickle cell disease.
… published December 24 in Genetics in Medicine . "Bringing community voices to the design and recruitment of upcoming … study couldn't come at a better time for the research community." In September, NIH's National Heart, Lung, and … inclusion in the long-term benefits of research. "Engagement and meaningful bi-directional dialogue …
About Genomics
Educational resources that will spark scientific curiosity, improve genomic literacy, and foster engagement among learners.
… scientific curiosity, improve genomic literacy and foster engagement among learners. … Related Content … Educational … scientific curiosity, improve genomic literacy, and foster engagement among learners. … Educational resources that will … scientific curiosity, improve genomic literacy, and foster engagement among learners. … About Genomics …
News Release
NIH-backed African scientists are engaged in a global research endeavor to understand the genetic basis of disease in all populations.
Research Training
An opportunity for recent college graduates to spend a year engaged in biomedical research in NHGRI laboratories.