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- Human Genome Reference Program (HGRP)1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Developmental Genotype-Tissue Expression (dGTEx)1
- Ethical, Legal and Social Implications (ELSI) Research Program4
- Genomics-Enabled Learning Health Systems (gLHS)1
News Release
An online Informed Consent Resource created in 2009 by NHGRI has been updated to keep pace with advances in genomics over the past several years
News and Events
A collection of institute resources, background information, and points of contact for members of the press.
… policies are available on request. … NHGRI Leadership … Resources … Press Resources … A collection of institute resources, background information, and points of contact for …
Secondary Genomics Findings Service
Frequently Asked Questions and Resources
… Below are frequently asked questions and resources you need for the Secondary Genomics Findings … Julie Sapp with questions. … Frequently Asked Questions … Resources … Previous … Frequently Asked Questions and Resources … Frequently Asked Questions and Resources … …
Jobs at NHGRI
NHGRI is seeking applications for the position of Education Outreach Specialist to serve as an expert in developing and coordinating innovative and comprehensive nationwide genomic science education and community engagement programs.
… engagement programs; develops and disseminates genomics educational content and resources; conducts program evaluations, needs assessments, … will oversee ECIB’s genomic data science/bioinformatics educational initiatives. … The NHGRI seeks candidates who …
Staff
Beth Tuck is the chief of the Education and Community Involvement Branch at NHGRI.
… engagement. Her achievements included designing curricular resources, engaging students and teachers in hands-on … genomic literacy, community engagement, genomics resources for teachers, National DNA Day … Beth Tuck is the …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan?  … that need to be addressed in the Resource Sharing Plan. Resources that should be addressed in NHGRI Resource Sharing Plans include (but are not limited to):  Educational materials (e.g., curriculum content)  Methods …
Fact Sheet
Sickle cell disease resources for patients
… your feedback about the sickle cell disease gene therapy resources. Please email your comments or questions to DemocratizingEd@mail.nih.gov . These educational materials are for informational purposes only. … for sickle cell disease. We encourage you to use these educational materials to talk with your healthcare provider …
Professional Development
ASHG and the National Human Genome Research Institute (NHGRI) co-sponsor the Genetics Education and Engagement Fellowship to support early-career genetics professionals wishing to transition to careers in genetics education and public engagement.
… from STEM fields. Previous fellows have developed digital educational resources, mentored youth interns, facilitated teacher … to customize their experience by selecting from various educational programs at ASHG to work on based on their …
News Release
The NHGRI Short Course in Genomics brings the latest genomics science to the classroom.
… in science. There are not many current genomics education resources available to teachers like Agoos and Lassar. The … to expand their professional development and bring updated educational resources on genomics back to their classrooms." … to the classroom. … NHGRI Short Course in Genomics, educational outreach, Carla Easter, Christina Daulton, Belen …
Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project developed patient-focused educational materials for the sickle cell community.
… Patients need accessible, understandable, and actionable educational materials to help them make such decisions. To … your feedback about the sickle cell disease gene therapy resources. Please email your comments or questions to DemocratizingEd@mail.nih.gov . These educational materials are for informational purposes only. …