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Research Funding
The Division of Extramural Operations conducts the review of NHGRI's grant applications and grants management.
… grants-making mission, including conducting the review of grant applications and grants management. … The … oversight and direction for the initial scientific merit review of research, resource and training applications and … federal agencies and professional societies … Scientific Review Officer, Scientific Review Branch, Division of …
News Release
Researchers have now identified three health conditions for which people with SCT are at increased risk.
… with SCT are at increased risk. … The First Comprehensive Review They include pulmonary embolism , proteinuria and … kidney disease . Findings from this first comprehensive review of clinical outcomes associated with SCT were … issue of the Annals of Internal Medicine. "Our systematic review found little rigorous evidence for most medical …
Clinical Research
The Protocol Service Center provides assistance in the development and administration of study protocols requiring NIH Institutional Review Board approval.
… of study protocols that require NIH Institutional Review Board (IRB) approval. … The NHGRI PSC is open to NHGRI … by protocol navigators with knowledge of the protocol review cycle and expertise in Institute and NIH policies and … in preparation for submission to the IRB for initial review. Assistance with writing, editing and administration …
Staff
Mr. Benjamin Berkman is the deputy director of NHGRI's Bioethics Core.
… Radically Expanded Genetic Testing. Washington and Lee Law Review (in press). Prince AE and Berkman BE. … Core. … Benjamin Berkman, bioethics, Institutional Review Board, informed consent, human biological samples … …
Staff
Dr. Sara Chandros Hull is a co-deputy scientific director in the Office of the Scientific Director and the director of NHGRI's Bioethics Core.
… research; and Chair of the  NIH Intramural Institutional Review Board . Dr. Hull recently completed a detail with the  … and limits of centralized Institutional Reveiw Board (IRB) review of multisite research, diversifying genomic research … American Indian and Alaska Native Tribal IRBs and research review committees. Dr. Hull conducts her research through a …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… were among the unexpected outcomes of the Institutional Review Board (IRB) training program for American Indians and … experiences. They also observed meetings of IRBs that review intramural research conducted at NIH, attended the NIH … in federally regulated research. ​ … Institutional Review Board, IRB, IRB training programs, American Indians …
Event
The Excellence in Clinical Research Seminar Series is designed to facilitate clinical research in the rare disease space with a focus on aspects of regulatory medicine and clinical trials in Mendelian disorders.
… a journal club joined by one of the leading authors on a peer-reviewed publication or (2) an interview with a leader … a journal club joined by one of the leading authors on a peer-reviewed publication or (2) an interview with a leader …
Policies and Guidance
Guidance describing NHGRI’s position on appropriate third-party involvement.
… party does not condition its services on a requirement to review draft publications or presentations.   A grantee or … Upon receipt of the information/documentation, NHGRI will review and provide the grantee or contractor with a written … of the third-party involvement. NHGRI will review and provide a grantee or contractor with an assessment …
FAQ
Frequently asked questions from the September 23, 2024 pre-application webinar the NHGRI ELSI Program hosted.
… do not include a Diversity Plan will be withdrawn prior to peer review and not considered for funding. Please note that … ( pozzattr@exchange.nih.gov ) with questions related to peer review.  … On September 23, 2024, The NHGRI ELSI Program …
FAQ
On July 20, 2023, the National Human Genome Research Institute (NHGRI) hosted a pre-application webinar for the Human Genome Reference Program (HGRP) Informatics Tools for the Pangenome Notice of Funding Opportunity (NOFO): RFA-HG-23-026. We collected the questions and answers from the webinar to help applicants.
… source and available to all on equal terms.              … Review, Award and Administration   What is the total budget … they are appreciated, and are helpful for planning the peer review. … On July 20, 2023, the National Human Genome … Note: Always Read the Review Criteria section of any NOFO. Peer reviewers are obligated to use the written Criteria in …