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- Genomics-Enabled Learning Health Systems (gLHS)2
- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… NHGRI Genomics and Society Working Group was established in 2012 as a working group of the National Advisory Council … in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. Identifies areas of potential synergy or …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we support in order to advance health or further research purposes. … will help to maximize the benefit of our investment in genomics research while ensuring that studies with particular …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… going to be a very busy one for NHGRI and for the field of genomics more generally. Many of us felt like we got “shot out of a cannon” shortly after January 1 — but in a good way with many exciting developments! I would like … date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… of Medicine's clinical text de-identification tool In some cases, the repository to which you're submitting data … define genomic data as an identifier. However, NIH has policy protections in place to mitigate the risk of … risks to participants, including the Genomic Data Sharing Policy and the NIH Policy for Issuing Certificates of …
Talking Glossary
La hibridación in situ es una técnica de laboratorio empleada para localizar una secuencia de ADN o ARN en una muestra biológica.
… Hibridación in situ … La hibridación in situ es una técnica de laboratorio empleada para localizar … una secuencia de ADN o ARN en una muestra biológica. … In situ hybridization is a laboratory technique used to …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “Strategic Vision for … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
The Genomics Landscape
In May 4, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details a report released by the National Academies of Science, Engineering, and Medicine, that provided a series of recommendations for using population descriptors in future genetics and genomics studies.
… April 25, that highlighted relevant and interesting topics in genomics and concluded with the annual Louise M. Slaughter … Research and the New NIH Data Management and Sharing (DMS) Policy webinar — May 23 2023 Healthcare Professionals' …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… bacteria, and animals. Editing DNA can lead to changes in physical traits, like eye color, and disease risk. … held a conference to talk about these and similar ethical issues at the International Summit on Human Gene Editing . … … many organisms, including plants, bacteria, and animals. … Policy Issues …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and resources … (DMS) Policy , on Tuesday, May 23, 2023. All times are in EDT. Presentation Slides with Notes (PDF) ELSI DMS Policy …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… to Register Controlled-Access Studies Study registration in dbGaP is required for large-scale human genomic studies, … non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … evolution of genomic data sharing September 3, 2014 NIH issues finalized policy on genomic data sharing August 27, …