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Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research agendas to informing the integration of genetics and genomics in clinical settings, sound … enhance and accelerate equitable access to the benefits of genomics research. These policies are better informed with …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … and the general public for responsible stewardship of federal research dollars. Sound management of research …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, … our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan? …   Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles of disseminating research …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… The final version of the Common Rule was published in the Federal Register on … will share in the profit. A statement about whether results will be disclosed to participants. A statement to … Human Rights, Federal Laws Protecting Research Subjects, Return Of Research Results, Common Rule … Revisions to the …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… data? NHGRI recognizes that methods for de-identification of qualitative data are developing, and existing tools may …   Guidance on de-identification from the Department of Health and Human Services NIST’s tools for … define genomic data as an identifier. However, NIH has policy protections in place to mitigate the risk of
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… The webinar will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… follows the NIH’s expectation for submission and release of scientific data, with the following exception: for genomic … non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … clinical trials are expected to register and submit results to  Clinicaltrials.gov . Sharing summary data via  …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… a Diverse Genomics Workforce Action Agenda . Development of resources, approaches, technologies that accelerate and … Researchers Initiative (NGRI)  efforts and NIH’s policy on early-stage investigators , NHGRI is committed to … funded or conducted in whole or in part by NIH that results in the generation of scientific data must submit a …