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- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Register Aug. 26, 2014 and published in the NIH Guide for Grants and Contracts Aug. 27, 2014. … Starting with … available only for research purposes consistent with the consent provided by participants in the original study. Under … GDS policy is the expectation that researchers obtain the informed consent of study participants for the potential …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific … to commit? This very much varies from study to study. For any study you are considering, it is important that you … information about the study, and that they voluntarily consent to participation. The research team must inform you …
Research at NHGRI
The NHGRI Intramural Research Award recognizes research achievements by trainees in basic, clinical, and social behavioral science research.
… The NHGRI Intramural Research Award distinguishes meritorious research accomplishments for a single, notable research achievement or a larger body … who continue to make valuable contributions in the area of genomics and related fields. Our well-deserving recipients …
The Genomics Landscape
In the January 2020 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the newly developed polygenic risk scores webpage, which provides graphical and textual information about polygenic risk scores, describes polygenic traits, introduces how polygenic risk scores can be calculated, and explains how such scores can be interpreted.
… Congress passed and the President signed a federal budget for Fiscal Year 2020. Deep within the complicated set of … program that will aim to further build capacity for genomics research in the United States. NHGRI staff is now … NHGRI will soon require its grantees to obtain explicit consent for future research use and broad sharing of all …
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes and centers (ICs). Program Officer contact information is also included.
… are encouraged to propose topics and issues that are ripe for research, especially given rapid advances in genomic … cancer-related settings (e.g., participant preferences, informed consent, governance, privacy and security, and data sharing); …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… , one that highlights the “Guiding Principles and Values for Human Genomics” described in the recently published 2020 NHGRI … utility of generated data while maintaining privacy and consent. In an effort to improve data sharing in biomedical …
Research at NHGRI
CRGGH facilitates understanding of the relationship between genetic variation and population differences in disease distribution to inform health disparities.
… The Center for Research on Genomics and Global Health (CRGGH) facilitates a … primary objectives: Develop genomic resources for the conduct of primary research into the etiology of …
Research Funding
NHGRI solicits grant applications that relate to its scientific priorities and research interests
… submitted to the National Institutes of Health (NIH) for research or research training are investigator-initiated … and instructions via the Internet in order to stay informed of the latest updates and revisions to these … and research interests … Research Funding, Funding For Genomics Research, NIH Funding, NHGRI Funding … NHGRI …
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… Genomics is fostering an appreciation for what our DNA means for our health, identities and … major areas of study in ELSI research are questions about consent and privacy. For example, what do you need to know … your DNA before you agree to participate? That's called " informed consent ." As new areas of genomics have developed …
About NHGRI
The National Advisory Council for Human Genome Research provides expert advice on genetics, genomics research, training and programs to NHGRI and the NIH.
… The National Advisory Council for Human Genome Research (NACHGR) advises the Department of Health and Human … regarding complex issues facing the field of genomics. … Meeting Date Date/Times Feb. 10-11, 2025 Feb. …