Search Results
News Release
NIH programs are establishing which genes and genomic variants play a role in human disease, enabling use in medicine and research.
… Institutes of Health are establishing which genes and genomic variants play a role in human disease, enabling their use in genomic medicine and research. NIH's Clinical Genome Resource ( ClinGen ) and ClinVar … experts to develop standard processes for reviewing data about gene variants and their connections to health and …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, … of genomics research in our work, including these key policy issues. … NHGRI considers the ethical, legal and … of genomics research in our work, including these key policy issues … About Genomics …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for … product or process disclosed.  … Disclaimers … Copyright Policy … Text, graphics, videos, illustrations and other … the public domain, unless indicated. ​ … NHGRI Copyright Policy, Image Use Policy, Public Domain Imagery, Genomics …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… visited; Address of the Web site that connected you to an NIH Web site (such as google.com or bing.com); and, Demographic and interest data. We use this information to measure the number of … or general issues related to genomics research and genomic medicine. In effort to bring science education to the …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… … Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National … mission is to promote the understanding and application of genomic knowledge to advance human health and society. "Ms. … policy positions on issues arising from the translation of genomic research discoveries to uses within the public …
News Release
NHGRI researchers have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) workbook, which helps people use their family history to assess their risk for heart disease, diabetes, breast cancer and colorectal cancer.
… (NHGRI), part of the National Institutes of Health (NIH), have developed the Families Sharing Health Assessment and Risk Evaluation (SHARE) … journal Public Health Genomics , the researchers published data gathered from questions on the efficacy of the workbook …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. Notice of … … To send questions and comments, email NHGRIsocial@nih.gov  or use the hashtag #NHGRIreorg on social media. … …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… available regarding the DMS Policy, where should I start? NIH resources regarding the DMS Policy are available on the NIH Scientific Data Sharing site. Consider starting with the e-Learning … NHGRI has released some Considerations for Sharing Non-Genomic Data from Human Research Participants. … Policy Scope …
The Genomics Landscape
In the April 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. talks about the NIH UNITE program's goal to end structural racism in biomedical research.
… biomedical research, to science education and outreach, to data science policy and strategy. But before you get to those … last month’s issue of The Genomics Landscape , the NHGRI Genomic Data Science Working Group of the National Advisory … the institute and the field of genomics. …  Last month, NIH Director Francis Collins, M.D., Ph.D, announced expansive …
News Release
Ten investigators will receive exome sequencing data as part of their clinical research projects at the NIH Clinical Center.
… Ten intramural investigators will receive exome sequencing data as part of their clinical research projects at the NIH Clinical Center through awards just announced by the … (CCGO), which is encouraging NIH institutes to jumpstart genomic medicine by increasing the use of genomic data in …