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Media Advisory
With the publication of 16 high-quality reference genomes from across vertebrates, the Vertebrate Genome Project establishes standards for biodiversity genomics and reports discoveries in comparative biology, conservation, and health research
… and disease. … The Vertebrate Genomes Project , part of the Genome 10K  Community of Scientists, today … genomes from across vertebrates, the project establishes standards for the new era of biodiversity genomics, and … vertebrates, the Vertebrate Genome Project establishes standards for biodiversity genomics and reports discoveries …
Research at NHGRI
The Division of Intramural Research conducts scientific studies in NHGRI's labs on and around the NIH campus in Bethesda, Md.
… led by the Scientific Director, with input from its Board of Scientific Counselors  - a group that provides expert … all research and training ongoing in the NHGRI Division of Intramural Research. Clinical research is overseen by the … investigators involved in patient-based research.  Each of the more than 50 NHGRI investigators are assigned to one …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, … health-related information, are critical for the success of most human scientific research. Researchers and research … shows respect for personal autonomy and is an important ethical requirement in research. … Informed consent shows …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… aims to develop optimal approaches for the integration of genomic discoveries into clinical and community contexts. … Our research focuses on a spectrum of disorders from those that have a major public health … with significant impact on affected families. We conduct research at the intersection of genomics and the …
Professional Development Programs
The JHU/NHGRI Genetic Counseling Training Program trains students to conduct research and provides clinical rotations to learn about genetic conditions.
… Genetic Counseling Training Program trains students to conduct social, behavior and policy research in the field of genetic counseling and provides clinical rotations for … of the public in understanding genomics and accompanying ethical, legal, and social issues. EveryLife Foundation for …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, and social aspect of genomics research in our …
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… and community involvement programs to engage a broad range of the public in understanding genomics and accompanying ethical, legal, and social issues. … ECIB's education programs include those to inform the public of the latest advances in genomics, as well as to support the …
Virtual Exhibit
The Human Genome Project changed traditional understandings of how and why scientific research is conducted. It was, however, not without its detractors. Early in 1990, there was an effort to stop funding for the nascent Human Genome Project, in the form of a letter writing campaign.
… Caption: A copy of the first page of Martin Rechsteiner’s letter, which circulated and spurred … part of the budget was allocated to understanding the ethical and legal consequences of having human genomic …
AnVIL
The Data Use Oversight System (DUOS) is a semi-automated study registration and DAR management service informed by the GA4GH DUO standard, which enables the secondary use of human genomics and other controlled-access data in compliance with the informed consent of a study’s participants.
… The National Institutes of Health (NIH) Data Access Committees (DACs) play an … in a manner that is consistent with the informed consent of the study’s participants. The growing demand for controlled-access datasets has spurred the development of new semi-automated systems that retains oversight by the …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… Mjoseth … Aha moments were among the unexpected outcomes of the Institutional Review Board (IRB) training program for … of the 3.5-month program, they discussed challenging ethical questions from the real world and tailored research … which enhances and creates new insights in the research I conduct on maternal and child health issues," Dr. Around Him …