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The following are research areas of interest that have been identified by the participating NIH institutes and centers (ICs). Program Officer contact information is also included.
… have been identified by the participating NIH institutes and centers (ICs). Program Officer contact information is … and Implementation: These projects may investigate the ethical, legal, social and policy issues that arise in connection with …
News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… states. Pediatricians, in particular, face complicated ethical questions about what information they should disclose, and to whom, when genome sequencing uncovers signs of … McEwen, J.D., Ph.D., program director for the Ethical, Legal and Social Implications (ELSI) Research Program in the …
News Release
Two grants will support studies on genomic literacy among Africans relating to research conducted in Africa by African investigators.
… The three-year grants are part of the Human Heredity and Health in Africa (H3Africa) program, funded by the … about disease susceptibility. Both grants are part of the Ethical, Legal and Social Implications (ELSI) component of H3Africa. …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… Institute Keynote Session: What are the opportunities and challenges for ML in genomics research? Moderator: … 2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine learning in …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… 1:00 - 1:10 p.m. — Welcome and Introduction Eric Green, NHGRI Christopher Donohue, NHGRI … - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, Harvard …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… The Social and Behavioral Research Branch (SBRB) Seminar … researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community. …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute.
… Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the National Human Genome … Institutes of Health (NIH). Mr. Ross has a Bachelor's and Master's degree in Business Administration (Health Care … National Human Genome Research Institute. … standards of ethical conduct, human resources, conflicts of interest, …
Event
November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17.
… Institute will host several engagement events over social media on Wednesday, November 17. We encourage you and your organizations to join in and help amplify our Institute’s mission to increase genomic …
Media Advisory
On January 25, 2023, the National Human Genome Research Institute will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and potential for misuse.
… of Health will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… Laura M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … for Children with Newborn Screening-Related Conditions: Implications for the Expansion of Genomics in …