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- Genome Technology Program4
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- Ethical, Legal and Social Implications (ELSI) Research Program7
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The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… MBBS, D.Phil. , senior investigator within our Intramural Research Program’s Center for Precision Health , to learn more about his serendipitous journey into genetics research and what he is excited about for the future of … date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… Exception for Samples Lacking Explicit Consent for Future Research Use and Broad Data Sharing Investigators … non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … balance the expectation to share data with participant privacy considerations . Though the expectation is for …
Policies and Guidance
For most of FY20, NHGRI’s extramural program will be operating under the 2011 National Human Genome Research Institute (NHGRI) strategic plan.
… - individuals from different and complementary related research disciplines and career - are being sought. NHGRI’s … participation by many scientists in the extramural research community, as well as other scholars and members of … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… simplify, and enhance" oversight for human subjects research in the United States to address changes in the … these technologies along with recommendations on consent, privacy, and data protections that will go through a public … follow-up (.109(f)). Tribal Sovereignty (.101(f)) The policy, as before, does not affect state or local laws and …
Clinical Research
The Institutional Review Board (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural … Data Sharing U.S. Federal Government 45 CFR 46 Federal Policy for the Protection of Human Subjects Office for … of other institutes. … Human Subjects Research, Research Privacy, Privacy Of Research Participants, Clinical Trials, …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… and data science. Dissemination and implementation of research findings and technology to the broader biomedical … issues related to genomic advances. Projects that broaden research involving diverse populations. Training, developing, … Researchers Initiative (NGRI) efforts and NIH’s policy on early-stage investigators , NHGRI is committed to …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support remains … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… participation by many scientists in the extramural research community, as well as other scholars and members of … approved by the National Advisory Council for Human Genome Research (NACHGR). The focus of NHGRI funding support … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… Sharing Plan? Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … information and should factor the consideration of privacy in the development of their Resource Sharing Plan. …