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- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… and may be shared broadly and used for future research in a manner consistent with the participant’s informed … possible.  - Credit: NHGRI Special Considerations for Genomics Research and NIH Sample Language for Data and … access to your own information.   - Credit: NIH CoC Policy Page  … Sample Informed Consent Language Aligned to …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… funded by NHGRI or other NIH Institutes takes place in the petri dish and in nonhuman organisms such as mice or zebrafish. Researchers … health, rare diseases, and many other disease areas. … Policy Issues …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “Strategic Vision for … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… In October 2020, NHGRI published its “ Strategic Vision for … of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small …
Policies and Guidance
For FY2024, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Scientific Priorities Applications that address issues in the NHGRI Strategic Vision and NHGRI Building a Diverse … Researchers Initiative (NGRI)  efforts and NIH’s policy on early-stage investigators , NHGRI is committed to …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic medicine is making an impact in the fields of oncology, pharmacology, rare and undiagnosed … will also factor in any potential ethical and legal issues, as well economic factors such as cost-benefit ratios. …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… with genetic disorders and members of the public, both in the United States and around the world, have diverse views … it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December … have diverse about germline genome editing. … Policy Issues …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific … FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get Involved … … understand, prevent, detect and treat disease. … Policy Issues …
The Genomics Landscape
In the March 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Centers of Excellence in Genomic Science (CEGS) Program evaluation.
… Executive Officer . Amanda will bring extensive experience in leading scientific societies, mostly recently at the … and NHGRI, I look forward to working closely with Amanda in the coming years. Second, later this month, Sean Mooney, … NIH’s data ecosystem, something of critical importance for genomics. In addition, Sean’s own research group will be …
The Genomics Landscape
In the July 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes the inaugural class of the ASHG-NHGRI Genomics and Public Service Fellowship Program.
… years ago, and it is truly amazing how much has happened in genomics since then, including some impressive advances in … training and career development opportunities in public policy, education and engagement, science communication, and … research, which reviewed the complex set of relevant issues and created guidelines for best practices when using …