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- Ethical, Legal and Social Implications (ELSI) Research Program3
- Genomics-Enabled Learning Health Systems (gLHS)1
- Genome Technology Program1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- Genomic Innovator Awards1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)2
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Ethical, Legal and Social Implications (ELSI) of Citizen Science … National Institutes of Health Fishers Lane … Lane … Ethical, Legal and Social Implications of Citizen Science … Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… lecture will be given by Joe Palca, Ph.D., a former NPR science correspondent and founder of Scicommers, a collective of science communicators. I encourage you to attend, and please … of the field, NHGRI established the Office of Genomic Data Science (OGDS) a little over two years ago. Directed by …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… access to your own information.   - Credit: NIH CoC Policy Page  … Sample Informed Consent Language Aligned to … Phenotypic Data Subject to the NIH Genomic Data Sharing Policy … This page of the Informed Consent Resource provides … It's also important to remember that the GDS Policy does not prevent or disqualify participants from …
Funding Opportunities
Funding Opportunities for Investigator-Initiated Research in Computational Genomics and Data Science
The Computational Genomics and Data Science Program Announcements (PARs) invite applications for investigator-initiated research efforts fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization and exploration.
… Data HG012573 … The Computational Genomics and Data Science Program Announcements (PARs) invite applications for … fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization … NHGRI’s broader efforts in Computational Genomics and Data Science . … Upcoming Concept: Investigator Initiated Research …
Staff
Dr. Shurjo Sen is a program director in NHGRI's Division of Genome Sciences who manages a portfolio of grants focused upon genomic data sciences, and is particularly interested in transitioning genomics from a centralized data repository model to cloud-based collaborative science.
… data repository model to cloud-based collaborative science. Apart from genomic data science, Dr. Sen’s grant portfolio also includes genomic … have natural microbiota and model human immune responses . Science 2019 Aug 2;365(6452) [ PubMed ] Johnston JJ, …
News Release
The National Academy of Sciences (NAS) has elected Elaine A. Ostrander, Ph.D., National Institutes of Health Distinguished Investigator as a new member.
… NAS considers membership to be a “mark of excellence in science and is considered one of the highest honors that a …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
… trans-NIH initiatives and programs, including a Citizen Science Working Group. Currently, Dr. Kaufman focuses on ELSI … … Dave Kaufman, Ph.D. … Dave Kaufman, return of results policy, ethical legal and social implications, genomic information, citizen science … Dave Kaufman, return of results policy, ethical …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy  below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … genotypes and phenotypes  (dbGaP), the NHGRI Genomic Data Science Analysis, Visualization, and Informatics Lab-Space …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … response, we decided that while we assess the state of the science and any potential risks to research participants, NIH … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … Related …
Event
The NHGRI Center for Genomics and Data Science Research is pleased to host Dr. Ewan Birney for a special seminar to celebrate the center’s first year of operation.
… The NHGRI Center for Genomics and Data Science Research is pleased to host Dr. Ewan Birney for a … 50 South Drive … Room 1227 … Center for Genomics and Data Science Research Special Seminar … The NHGRI Center for Genomics and Data Science Research is pleased to host Dr. Ewan Birney for a …