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Frequently asked questions for Investigator-Initiated Research on Genetic Counseling Processes and Practices FOAs (RFA-HG-20-048 and RFA-HG-20-049).
… Projects proposing to apply a genetic counseling strategy(ies) to a specific disease/discipline should demonstrate how the strategy(ies) and/or finding(s) is broadly applicable to … disease or disease area should demonstrate how the strategy(ies) and/or finding(s) is broadly applicable to …
Staff
Dr. Susan Persky is an associate investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
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For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… Alliance, Seattle Christine Wilson, M.S., Health Care Communications Consultant, Foxhall Communications Strategies … Vence Bonham, J.D., Senior … Jean Jenkins, Ph.D., Clinical Advisor, Division of Policy, Communications and Education Laura Lyman Rodriguez, Ph.D., …
News Release
Nurses and other health professionals looking to integrate genomics into patient care now have access to an online toolkit with more than 100 resources.
Research at NHGRI
The NHGRI Office of the Clinical Director supports world-class clinical research and enhances the education of genetics investigators at all levels.
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… director. In their conversation, moderated by Office of Communications Director Sarah Bates, M.S., the four …
The Genomics Landscape
In the November 2023 edition of The Genomics Landscape, NHGRI Director Eric Green, celebrates the 30th anniversary of the NHGRI Intramural Research Program as well as announces the launch of a new digital history archive.
News Release
Researchers and clinicians are sequencing human genomes faster than ever, so considering the societal implications of genomic data is even crucial.
Event
On February 9-10, 2021, NHGRI will host it's 13th Genomic Medicine Meeting - Genomic Medicine XIII: Developing a Clinical Genomic Informatics Research Agenda.
… the case for a clinical genomic informatics research strategy Co-Moderators: Rex L. Chisholm, Ph.D. and Lucila … - Break Session 6: A Genomic-based Informatics Research Strategy Co-Moderators: Ken L. Wiley, Jr., Ph.D. and Marc S. … .  The goal of this meeting was to develop a research strategy on the use of genomic-based clinical informatics …
The Genomics Landscape
In the August 4, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the establishment of the Global Biodata Coalition (GBC), which aims to move towards more internationally coordinated, sustainable, and streamlined mechanisms that support the biodata ecosystem.
… of being generated? This target was documented during a strategy meeting in Bermuda in 1997, which is why this …