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- Genome Technology Program4
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)1
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… rights and welfare of the participants, and require that researchers clarify the benefits and risks of participating … the community structure. Some communities may require the researchers to obtain community approval before seeking … methods significantly faster and cheaper, allowing researchers to generate larger datasets than ever before. …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… research findings. … There are ongoing discussions among researchers, ethicists, policymakers, and research … research. The greater volume of genomic data available to researchers makes the discovery of IFs more likely. In … be discovered. Whether, When, How to Return Increasingly, researchers are returning IFs or IRRs from genomic research …
Research Training
The NHGRI Social and Behavioral Research Branch invites recent graduates to pursue multidisciplinary training in genomics and health.
… multidisciplinary training in genomics and health. … Researchers in SBRB investigate social, behavioral, and …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is conducted ethically. The Common Rule requires that researchers provide research participants with complete … information to conduct their research; in that case, researchers will describe how they will protect that … you to share your genetic and health information with researchers, clinicians, and others. Click here for studies …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… under the new policy, as of October 1, 2017, NIH-funded researchers and their institutions will automatically be … of Confidentiality under the new policy will prohibit researchers from disclosing names or other identifying … 21st Century Cures Act, genetic privacy, genomic privacy, researchers and privacy, researchers' certificates of …
Fact Sheet
Early in the COVID-19 pandemic, researchers used state-of-the-art genomic sequencers to quickly sequence the SARS-CoV-2 virus.
…  …  Early in the COVID-19 pandemic, researchers used state-of-the-art genomic sequencers to … virus. This sequence was quickly shared with other researchers. This allowed researchers from across the globe … Vaccine Production … COVID-19 mRNA Vaccine Production … Early in the COVID-19 pandemic, researchers used …
Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… discuss research opportunities. … FAQ for Providers and Researchers … FAQs for Autoinflammatory Diseases Study providers and researchers. … FAQs for Autoinflammatory Diseases Study providers and researchers. … Clinical Research …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… that are most often used for research, training and career development, and conferences addressing ethical, … community with particular attention to trainees and early career scholars; and 3) provide a highly accessible … research, and 4) workforce development opportunities for early career scholars, research team members, and other BBAER …