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- Ethical, Legal and Social Implications (ELSI) Research Program7
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program4
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
For Patients and Families
​Clinical research is research conducted with human subjects, or material of human origin, in which the researcher directly interacts with human subjects.
… Clinical research is research conducted with human subjects, or material of human … Clinical researchers at the National Human Genome Research Institute (NHGRI) are developing advanced methods … of inherited and acquired genetic disorders. … Clinical research is research conducted with human subjects, or …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not … model organisms or other methods. All federally-funded research with human participants such as that supported by … clarify the benefits and risks of participating in the research. … All research with human participants supported by …
Research at NHGRI
NHGRI's research focuses on the understanding of human biology and developing new methods for treating disease.
… The National Human Genome Research Institute (NHGRI) conducts a broad program of laboratory and clinical research to translate genomics into a greater understanding … of heritable and genetic disorders. … Related Content … Research Areas … The National Human Genome Research …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … appropriate for the scientists to look for and share such research findings. … There are ongoing discussions among researchers, ethicists, policymakers, and research participants about the return of individual research …
Staff
Dr. Lucia Hindorff is the Lead Extramural Training Program Director in the Training, Diversity, and Health Equity Office at the National Human Genome Research Institute.
… Dr. Lucia Hindorff is the Lead Extramural Training Program Director in the Training, Diversity, and … Health Equity (TiDHE) Office at the National Human Genome Research Institute (NHGRI). She previously served as an … Ph.D. degrees from the University of Washington, where her research focused on cardiovascular genetic epidemiology and …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration … prevent, detect and better treat disease. In some cases, research participants may also gain some individual benefit, … to a treatment in development. … A wide range of genomic research studies need participants, each with different …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … is collected from participants as part of federally-funded research. … To implement one of the law's privacy provisions, … who conduct sensitive, health-related human subjects research be issued Certificates of Confidentiality . …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for … discoveries into clinical and community contexts. … Our research focuses on a spectrum of disorders from those that … Genetics Residency Program JHU/NIH Genetic Counseling Training Program (GCTP) Department of Clinical Education and …
Research at NHGRI
CRGGH develops a comprehensive staff and training program that uses genomic approaches to study human health and to reduce/eliminate health disparities.
… Dr. Rotimi has provided a wonderful environment for the training of several minority scientists and students from … school through graduate programs and beyond in biomedical research. As the Director of the CRGGH, he will continue to … and faculty in genomics and human genetic variation research. … The Center for Research on Genomics and Global …
Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… Ivona Aksentijevich if you would like to further discuss research opportunities. … FAQ for Providers and Researchers … … Diseases Study providers and researchers. … Clinical Research …