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Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… The final version of the Common Rule was published in the Federal Register on January 19, 2017, following the publication of a Notice of Proposed Rulemaking (NPRM) on September 8, … protections are in place for safeguarding the privacy and confidentiality of participants, and (for secondary studies) …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… Genomics research is shaping the future of medicine. For these advances of this research to benefit everyone more equally and improve health equity, it is important that the diversity of the study participants reflect the diversity of the …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… to participate in the research needed for the development of new tests, therapies, and cures. This page provides an overview of the Genetic Information Nondiscrimination Act (GINA) and … in the research project and a statement describing how the confidentiality of records will be maintained. NHGRI has …
Explainer
Appropriate use of population descriptors in research is a critical scientific issue that is important for advancing genomic science and improving healthcare across human populations.
… The Big Picture Appropriate use of population descriptors in research is a critical … important given the ethical, legal and social implications of their historical and current use.  This explainer … into different races.  The third study uses the birth certificates of participants and their parents to assign a …
File
…  2017 ANNUAL  REPORT  International  Society  of Nurses in Genetics  2017 ANNUAL  REPORT  … the ISONG Board of Directors, I wrote letters and provided certificates of accomplishment to each of the nursing student …  by  the  ISONG  Board  (10/03/2017).  Privacy and Confidentiality  of  Genetic Information:  The  Role  of …
File
… Program V. NIH Common Fund/Trans-NIH VI. NHGRI Division of Policy, Communications, and Education VII. NHGRI … information to federally funded research  Mandatory Certificates of Confidentiality  FOIA exemptions Document 7 NIH …
Careers and Training
Frequently Asked Questions about the Genetic Counseling Training Program.
… questions by phone and by email. You may schedule a tour of the Johns Hopkins Bloomberg School of Public Health through the Admissions Office . Do you pay any of the travel costs for an interview? As our interviews all …
Clinical Research
The CLINSEQ® Study seeks to learn about the role that your genes play in your health.
… by getting a DNA sample from you, sequencing most or all of your genes, and comparing that to what we know about your … health histories. We look at genes related to a variety of conditions, including heart disease, breast cancer, and … researchers on our project take measures to maintain the confidentiality of your genetic testing results.  What …
The Genomics Landscape
In the July 2023 edition of The Genomics Landscape, NHGRI Director Eric Green describes the evolution of the NHGRI Intramural Research program over the last three decades talks about its future in conducting truly exceptional basic, translational, and clinical genomics research.
… Genomics Education Week , was a huge success. Dozens of healthcare professionals and over 700 other participants convened virtually to discuss the role of genomics in patient care, covering topics such as rare … genetic testing. If you missed it, recorded videos of the webinars and panels are available to watch on GenomeTV …
Funding Opportunities
The NHGRI Small Business Program awards Small Business Innovation Research (SBIR) and Small Business Technology Transfer (STTR) grants.
… mission and vision . NHGRI strives to improve the health of all humans through advances in genomics research. As a leading authority in the field of genomics, our mission is to accelerate scientific and … developing new technologies, and studying the impact of genomics on society. … For applications that align with a …