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Event
The National Human Genome Research Institute will hold the 93rd Meeting of National Advisory Council for Human Genome Research from May 17-18, 2021.
… The National Human Genome Research Institute will hold the 93rd Meeting of National Advisory Council for Human Genome Research from May 17-18, 2021. … Online … 93rd …
Event
The National Human Genome Research Institute will hold the 96th Meeting of National Advisory Council for Human Genome Research from May 16-17, 2022.
… The National Human Genome Research Institute will hold the 96th Meeting of National Advisory Council for Human Genome Research from May 16-17, 2022. Request an …
Event
The National Human Genome Research Institute will hold the 97th Meeting of National Advisory Council for Human Genome Research from September 19-20, 2022.
… The National Human Genome Research Institute will hold the 97th Meeting of National Advisory Council for Human Genome Research from September 19-20, 2022. Request an …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… that improve health while protecting the privacy of research participants. The final policy was posted in the … date, the policy will apply to all NIH-funded, large-scale human and non-human projects that generate genomic data. This includes …
15 Ways Genomics Influences Our World
Genomics is illuminating human and family origins at a level not previously possible.
… Genomics is illuminating human and family origins at a level not previously possible. … your ancestors, both near and distant? Advances since the Human Genome Project allow us to compare genome sequences … example, as Drs. Sarah Tishkoff and Carlos Bustamante's research groups showed in 2010 , an African American …
Research Funding
A collaborative large-scale genome sequencing effort to identify rare risk and protective variants contributing to multiple common disease phenotypes.
… approaches and technologies for multiple disease research communities and the wider biomedical research community. The CCDGs study cardiovascular diseases … contributing to multiple common disease phenotypes. … Research Funding …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… be respected when their genomic information is used for research, clinical applications or other uses. This page … defects. De-identified biospecimens are not considered human subjects research; therefore, they are not subject to … subjects” to obtain meaningful informed consent from each participant prior to their participation. Investigators must …
News Release
Researchers and clinicians are sequencing human genomes faster than ever, so considering the societal implications of genomic data is even crucial.
… Ethical, Legal and Social Implications (ELSI) Research Program at the National Human Genome Research Institute, launched in 1990 with the … that once we started generating massive amounts of human genomic data, there'd be lots of societal factors to …
Event
On October 25-29, 2022, the National Human Genome Research Institute (NHGRI) will participate in the ASHG Annual Meeting - the world's largest human genetics and genomics meeting and exposition.
… 25, 2022 7:57 p.m. — 8:00 p.m. Mendelian Phenotypes Human brains with Tay Sachs disease exhibit altered … in anti-hypertensive drug efficacy in the All of Us Research Program Board No. PB1600 Slavina Goleva Convention … type-specific gene expression and regulation by sex in human skeletal muscle Board No. PB2989 Sarah Hanks Convention …
Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… The Big Picture: Informed consent is crucial in research as it ensures individuals have an informed choice … do not require it? Not all research that involves human samples or data requires informed consent. According to … to continue to respect any known preferences of a research participant (e.g., as articulated in an advance directive) …