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Fact Sheet
Gene therapy for sickle cell disease is available to you through FDA-approved therapies and through clinical trials.
… it is important to understand what happens at each step. Talk with your healthcare team before, during and after each … process is called apheresis. Each round occurs over two to three days. To collect your stem cells, you will: Be admitted … stem cells. There are usually four weeks between rounds. Talk with your healthcare team about potential side effects, …
Fact Sheet
Sickle cell disease resources for patients
… We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team. …
The Genomics Landscape
In the August 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes Marcus G. Hodges as the new Intramural Training Office Director.
… the Centre for Population Genomics.  A recording of that talk is now available on YouTube . I was last in Australia 12 … The series began in July with a context-setting talk by Larry Brody, Ph.D., director of NHGRI’s Division of … well as to the genomics community overall.” “For more than three decades, trainees have been a key part of the …
Fact Sheet
Your mental and physical health are deeply connected. Mental health is important for your overall health and quality of life.
… to  find help .   Choose someone in your life you can talk to about how you are feeling without fear of judgement.  … We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team. …
News Release
Mothers may be able to reduce guilt over their children's inherited obesity guilt by being more careful in the future about their children's diet.
… information about their child's obesity risk. Seventy-three of the women were told only about the influence of … a second study, Drs. Persky and Street reported that plain talk about genomic influences can lessen patients' suspicion …
Event
On March 12-16, 2024, the National Human Genome Research Institute (NHGRI) will participate in the 2024 ACMG Annual Clinical Genetics Meeting - an annual medical and scientific conference continues to provide groundbreaking research and the latest advances in medical genetics, genomics and personalized medicine.
Fact Sheet
Sickle cell disease resources for healthcare providers
… We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team. …
Fact Sheet
A variety of approaches target the blood stem cells to relieve or reduce your symptoms of sickle cell disease.
… We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team. …