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- Human Genome Reference Program (HGRP)1
- Impact of Genomic Variation on Function (IGVF) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)1
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
- Ethical, Legal and Social Implications (ELSI) Research Program3
- Genomics-Enabled Learning Health Systems (gLHS)1
For Teachers
The Your Genome & You infographic introduces the basics of genetics and genomics, and how the science impacts our lives.
… designed by the National Human Genome Research Institute's Community Engagement in Genomics Working Group , which brings together community liaisons, health advocates and health practitioners …
Research at NHGRI
An international investigation into the genetics of severe acute malnutrition in children.
… analyses downstream. Each site will engage with local community advisory boards (CABs) to develop best practices … collection standards, beta testing of PocketLIMS, and engagement with local community advisory boards. Our next meeting is planned for …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Implementation Diversity and Inclusion in Genomic Research Community Engaged and Community Driven Research Design and Conduct of Genomic … and qualitative methods; and research that involves direct engagement with stakeholders. A number of other NIH …
News Release
Knowing your family health history can aid in detecting unique disease risks and lead to better prevention and treatment.
… turned to Reddit to answer questions from the Reddit community about their work on family health history as part … turned to Reddit to answer questions from the Reddit community about their work on family health history as part … of research. How can researchers foster trust and increase engagement in such communities? From Koehly_Lab : In Project …
Event
On October 29, 2021, NHGRI will host the Future Directions of the NHGRI Analysis, Visualization, and Informatics Lab-space (AnVIL) workshop to identify gaps, challenges and future opportunities related to NHGRI’s investments in the AnVIL’s cloud-based infrastructure, tools and services.
… Concurrent Breakout Rooms  Data Submission and Consortia Engagement  Moderators: Adam Resnick, Ph.D. (Children’s … needed to expand, diversify and support the AnVIL user community. The agenda includes four breakout rooms divided … into two sessions: 1) Data submission and consortia engagement 2) Analysis tools 3) Infrastructure 4) Outreach …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… opportunities for professional development, networking and community engagement. Workshop on the Use of Race and Ethnicity in … health and health disparities research. Inclusion and Engagement of Underrepresented Populations in Genomics A …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… the integration of genomic discoveries into clinical and community contexts. … Our research focuses on a spectrum of … reality to understand the clinician-patient relationship. Community translation of genomic discovery We evaluate … influence to improve knowledge of genomic information and engagement in risk-reducing behaviors. We also consider the …
MINC
The MINC teams were made up of an administrator and an educator. They learned a lot from this initiative that they wanted to share with you.
Professional Development
This is a fellowship program designed for recent undergraduates to gain exposure to and training in multiple career paths that advance public service for human genetics and genomics.
… public policy and advocacy; public education and engagement; science communication; nonprofit management; … Society is committed to building a diverse and inclusive community of human genetics and genomics professionals. ASHG … are/were enrolled in Tribal Colleges and Universities, community colleges, Hispanic-serving institutions, or …
The Genomics Landscape
In the July 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes the inaugural class of the ASHG-NHGRI Genomics and Public Service Fellowship Program.
… on ASHG’s website and elsewhere. NHGRI’s Education and Community Involvement Branch is hosting its annual Short … Designed for middle school and high school teachers and community college faculty teaching scientific courses, this … development opportunities in public policy, education and engagement, science communication, and scientific …