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The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to … major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to … major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to …
Intramural Training Office
In NIH's annual Three-Minute Talks (TmT) competition, postbaccalaureate researchers, graduate students, and postdoctoral fellows from each institute’s intramural research program have to describe their research clearly and engagingly in just three minutes using one PowerPoint slide. The competition challenges trainees to develop their communication skills as they explain the background, key findings, and significance of their work.
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI …  Workshop on Sharing Aggregate Data May 19-20, 2016  Public Webinar on the Draft Genomic Data Sharing Policy … Research Data … Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI …
Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project developed patient-focused educational materials for the sickle cell community.
… Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials …
Media Advisory
NHGRI will host a two-day symposium addressing historical and present-day constructions of disability and ableism, with a focus on the history and lived experiences of people with disabilities in the context of genomics and genetics.
… genomics and genetics. The event is free and open to the public. Follow #NHGRIevents on social media for more … genomics and genetics. The event is free and open to the public. Follow #NHGRIevents on social media for more …
Event
The Excellence in Clinical Research Seminar Series is designed to facilitate clinical research in the rare disease space with a focus on aspects of regulatory medicine and clinical trials in Mendelian disorders.
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… involvement programs to engage a broad range of the public in understanding genomics and accompanying ethical, … … ECIB's education programs include those to inform the public of the latest advances in genomics, as well as to … The branch leads programs and initiatives to promote the engagement of diverse communities in understanding genomics …
The Genomics Landscape
In the April 2020 edition of The Genomics Landscape, NHGRI Director Eric Green provides an update on the final stage of the Genomics2020 strategic planning process; the NIH website for COVID-19 information, the Gene documentary debut on PBS and more.
… if you like what you see and seek more active engagement, go ahead and download the PDF file and try it … the research, healthcare, education, policy, and diverse public communities; these events have included town halls, … and Twitter Chat DNA Day Twitter chat – April 9 Kids First public spring webinar – May 18 Genomics Videos 30th …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Understanding and Use of Genomics Healthcare System and Public Health Genomics and the Rights of Individuals and … and qualitative methods; and research that involves direct engagement with stakeholders. A number of other NIH … and the healthcare industry. Evolving conceptions of a public "duty" to participate in genomic research. How …
Research at NHGRI
An international investigation into the genetics of severe acute malnutrition in children.
… of reference databases. Using the tri-directional research engagement model ( Billawala, Taiwo, and Hanchard 2022 ), … collection standards, beta testing of PocketLIMS, and engagement with local community advisory boards. Our next …