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Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… Informational Elements Outlined by NIH Guidance Genomic and phenotypic data, and any other data relevant for the study (such as exposure … name, we will give them basic information such as your race, ethnic group, geographic region, age range, and sex …
National Advisory Council for Human Genome Research
The Director's Report-Related Documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in September 2024.
… of Genome Sciences 2 New Director, Training, Diversity, and Health Equity Office 3 New NIH-ACMG Genomic Medicine … Program Management Fellows 4 Journeys in Human Genetics and Genomics Colloquium 5 Eric Goes 'Down Under' in July … - Advancing Genomic Technology Development for Research and Clinical Application AGTD 2024 Open Science Day, YouTube …
Event
Opening remarks from Eric Green, Christopher Donohue and Michael Rembis.
… Irreducible Subjects: Disability and Genomics in the Past, Present and Future October 6-7, … or genetics. Disability and disabled lives are shaped by race, class, ethnicity, gender, religion, and other ways of being in the …
Event
NHGRI will host a two-day symposium, on December 2-3, 2021, examining the history of eugenics and scientific racism and their complex legacies in the modern health sciences.
… 2021 Time Topic/Speaker 10:00 - 10:15 a.m. Introductions and Welcome Chris Donohue and Eric Green (NHGRI) 10:15 - … 10:45 - 11:15 a.m. Accessing the Archive: Disability, Race and the History of Eugenic Institutionalization Michael … University) 10:15 - 10:45 a.m. Who is Unfit?: Centering Race and Disability in Histories of Eugenics Natalie Lira …
Fact Sheet
Enhancing the diversity of the research workforce fosters innovation and creativity.
… The Big Picture People from diverse backgrounds, women and people with disabilities are significantly underrepresented in biomedical research and clinical science. Individuals from diverse backgrounds can positively influence innovation and interpretation of research and health equity. The …
The Genomics Landscape
In the October 1, 2020 edition of The Genomics Landscape, Dr. Eric Green reflects on the last 30 years since the launch of the Human Genome Project.
… with the Human Genome Project successfully completed and genomics maturing into a well-respected discipline. I am … program entitled “ Historically Speaking: Intersecting Race, DNA, and Demography ,” which focused on advances in … genetics research and their implications for understanding race. The event was made possible by contributions from the …
The Genomics Landscape
In the August 6, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about NHGRI's completion of the third phase of the ENCODE Project and how it reveals the most extensive catalog to date of candidate functional elements that may regulate the genes in the human and mouse genomes.
… M.D., Ph.D. … As the summer heat bears down on the country and the battle against the COVID-19 pandemic continues, I hope that you, your family, and your friends and colleagues remain safe and healthy. Like most …
News Release
NHGRI researchers identified 59 genes or gene regions linked to canine athletics.
… of canine genomics, sport hunting dogs are super athletes and terriers are plucky supermodels. National Human Genome … those with roles in endurance, heart function, blood flow and pain perception. What terriers lacked in sporty genes, … that regulate blood pressure, muscle size, oxygen use and fatigue resistance. Because it's difficult to identify …
File
… member May 8, 2017 IGNITE & Beyond Workshop • Identify and prioritize scientific opportunities to fill evidence gaps … effects Diversity in ancestry 72,147 IGNITE participants Race/ethnicity N % White, non -Hispanic 54,698 75 Black or African …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… Laura M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research … P, Curtis B, Unger L, Koehly LM. Dynamics of sadness by race, ethnicity, and income following George Floyd’s Death . SSM – …