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The National Human Genome Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on healthcare provider genomics education.
… of Pharmacy (AAFP) American College of Medical Genetics and Genomics (ACMG) American Board of Medical Genetics and Genomics (ABMGG) and University of Colorado American … Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on …
Careers and Training
Scientists and thousands of other professionals are using discoveries in genetics to revolutionize the world. This means careers in genetics and genomics are booming. And there are many other careers you don’t usually think of as science, like education, social work, and even law and the arts that are affected by this growth, creating even more career opportunities.
… Scientists and thousands of other professionals are using discoveries in … influence the growth and development of an organism. Ethical, Legal, and Social Implications (ELSI) Research ELSI …
Fact Sheets
Cloning describes a number of different processes that can be used to produce genetically identical copies of a biological entity.
… of biological materials, including genes, cells, tissues and even entire organisms, such as a sheep. … Yes. In nature, … both reproductive and therapeutic cloning raise important ethical issues, especially as related to the potential use of … drawbacks of therapeutic cloning? … What are some of the ethical issues related to cloning? … Cloning Fact Sheet … …
News Release
NHGRI researchers have discovered clues to the possible cause of recurring, non-contagious fevers and sores that affect only children. Several genes have been implicated with the syndrome, known as PFAPA syndrome (Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis), which could lead to new treatments.
… to the possible cause of recurring, non-contagious fevers and sores that affect only children. Several genes have been … by recurrent fever, painful canker sores, sore throat and inflamed lymph nodes. The condition starts at an early age, between the ages of 1 and 5. The first sign is fever, accompanied by sore throat …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
… of their genetic profiles in regard to health insurance and employment. … Genetic Information Nondiscrimination Act, … genetic information, as it applies to health insurance and employment. These protections are intended to encourage … of their genetic profiles in regard to health insurance and employment. … Educational Resources …
News Release
NHGRI plans to appoint Vence Bonham Jr., J.D., as acting deputy director, to elevate and accelerate efforts in diversity, inclusion and health equity.
… Sarah A. Bates, M.S. … Appointment will elevate and accelerate NHGRI’s efforts in diversity, inclusion and … to diversity, inclusion, health equity, anti-racism and social justice. This appointment will expand upon Bonham’s … medicine. His research focuses primarily on the social implications of new knowledge, particularly in communities of …
The Genomics Landscape
In the July 7, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., emphasizes the importance of the Technology Transfer Office and its mission to manage all the legal negotiations that help to protect federally funded research from being unduly exploited, while also giving that research avenues to reach patients through the commercialization of promising advances.
… Ph.D. , Karen Miga, Ph.D. , Evan Eichler, Ph.D. , and Michael Schatz, Ph.D. were honored for their roles in … Confidentiality Disclosure Agreements, and other legal documents that enable the sharing of materials and … checking first!” rule. Basically, the TTO manages all the legal negotiations that help to protect federally funded …
Staff
Dr. Susan Persky is an associate investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… Dr. Susan Persky is an associate investigator and head of the Health Communication and Behavior Unit. She … directs the Immersive Simulation Program (ISP) within the Social and Behavioral Research Branch (SBRB) at the National … obesity, and diabetes. These processes can have important implications for psychological and physical well-being. …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… your thoughts on the topics being discussed on genome.gov and other websites owned or administered by NHGRI. … NHGRI … views expressed in comments reflect those of the author and do not necessarily reflect the official views of NHGRI, … please do not include information (e.g., name, email, social security numbers) in the text of your comment that …
News Release
The U.S. National Institutes of Health (NIH) has long invested in basic genetics and genomics research, clinical trials, as well as translational medicine and social science studies, to advance our understanding of this widespread illness to help develop effective therapies.
… Today, the U.S. Food and Drug Administration (FDA) approved two gene therapies for … the treatment of sickle cell disease in patients 12 years and older. About 100,000 Americans and millions of people … clinical trials, as well as translational medicine and social science studies, to advance our understanding of this …