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- Ethical, Legal and Social Implications (ELSI) Research Program6
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genetic Architecture of Complex Traits1
- Genome Technology Program5
- Human Genome Reference Program (HGRP)2
- Impact of Genomic Variation on Function (IGVF) Consortium3
- Encyclopedia of DNA Elements (ENCODE) Project1
- Molecular Phenotypes of Null Alleles in Cells (MorPhiC)1
- Genomic Innovator Awards2
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)3
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium2
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. While many recognize … and risks while crafting genomic data sharing policies. In this session, the four panelists will describe evolving … … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. … Data sharing has …
The Genomics Landscape
In the October 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes James Thomas as the new director for NIH Intramural Sequencing Center (NISC).
… address to the entering class at Spelman College in Atlanta, Georgia. Since most of the students in attendance … are not majoring in the sciences, I focused on how genomics is increasingly relevant in our everyday lives. It … an excellent opportunity to gain experience in genomics policy, education, communications, or program management. …
The Genomics Landscape
In the September 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes Robert Rivers as the new director for institute’s Training, Diversity, and Health Equity (TiDHE) Office.
… All the best, … The impact of clinical genome sequencing in a global population with suspected rare genetic disease … for the Advancement of Science (AAAS) Science & Technology Policy Fellowship Program, through which he worked at NCI's … staff on genomics workforce diversity and health equity issues. Moreover, Dr. Rivers will lead collaborations with …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… world are harnessing the power of nature to solve problems in medicine, manufacturing and agriculture. … Redesigning … the Presidential Commission for the Study of Bioethical Issues and the National Academies of Sciences, Engineering … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… available through newly developed genetic tests. In order for patients to have full access to the benefits of … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … of evaluating genetic tests for reimbursement. … Policy Issues …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. … The …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database. … Bill: The … or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent … found in the Genome Statue and Legislative Database. … Policy Issues …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … for a Just and Equitable Future.” Justice and equity issues are embedded in the complex questions about utility, … two fellowships each year. The Genetics and Public Policy Fellowship provides fellows an opportunity to work in …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… sequencing (NGS) and other genomic tests to be in vitro diagnostic devices (IVDs), a type of medical device. … to help understand the regulation in the context of genomics. Genomic studies that were either successfully … understanding of the regulation in the genomics context. … Policy Issues …