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Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… (NHGRI) in 2012 as a program director in the Division of Genomics and Society. Dr. Lockhart oversees a portfolio of research and career development grants related to the … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… Asked Questions Data sharing is an important aspect of the research endeavor that ensures maximal use of … the NIH definition of metadata provided in the Final NIH Policy for Data Management and Sharing : Metadata  are “data … such as study protocols, informed consent form templates, results report templates, methodologies used, and …
Policies and Guidance
Guidance describing NHGRI’s position on appropriate third-party involvement.
… and contract-recipients sometimes seek or receive offers of support from companies or other third parties (e.g., … investigators that are subject to the NIH Data Sharing Policy or the NIH Genomic Data Sharing (GDS) Policy , … support in exchange for receiving special access to study results, data, findings, or intellectual property. … NHGRI …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As February begins, many of us at NHGRI are working hard in preparation for the … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level … and the use of genetics in law enforcement. The search results provide a quick summary along with the current …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or … a disease or will be affected themselves. These indirect results can pose an ethical conflict between a possible duty …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… a bill can go through before becoming a law. The history of the Genetic Information Nondiscrimination Act  (GINA), a law that was passed in 2008 and impacts the field of genomics, provides an excellent example of the legislative … Non-Discrimination Act of 2003 as an example. … Policy Issues …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a portfolio of research, training and career development grants related … Genomics and Society. … Joy Boyer, societal issues, social policy, ethical legal and social implications, newborn …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… were issued in 1982, following the U.S. Supreme Court case of Diamond vs. Chakrabarty, which opened the door to … patenting biotechnology discoveries. Since then, the core of the debate over gene patents has been whether or not the … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … you or your family members. For example, genomic testing results could tell you information about disease risk, … understand, prevent, detect and treat disease. … Policy Issues …
News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… and science communicator, has been named chief of the Communications and Public Liaison Branch (CPLB) at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH). In this role, he … goals and policies. … CPLB is part of the Division of Policy, Communications, and Education (DPCE), whose mission …