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Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and … research with human participants. In response to cases of ethical misconduct during WWII, the international scientific … or an individual's family members, and further provides legal protection against discrimination on the basis of a …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… Eric Green, M.D., Ph.D. … Spring is here, and with it comes many opportunities to engage in areas … open science and data sharing are done in ways that are ethical and equable, and that the data are shared with … have moved beyond population descriptors based on historic social constructs such as race. Speakers: Charmaine Royal, …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… meeting was particularly busy, including the presentation and discussion of four proposals (known as concept … as well as head of the Health Disparities Unit in NHGRI’s Social and Behavioral Research Branch . His appointment as … Vence is familiar with NHGRI’s long-standing leadership on issues related to diversity in genomics. Most recently, he …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… extramural research community, as well as other scholars and members of the public, and is overseen and approved by … and expanding the diversity of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… In the United States and around the world, scientific institutions are developing … research. This initiative examined the clinical, ethical, legal and social implications of human gene editing. Their …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… April is upon us, bringing warmer weather and one of the highlights of the year, National DNA Day . On … April 25, NHGRI will host a range of exciting activities and events, including the annual Louise M. Slaughter National … input about computational genomics and data science issues. Recently, members of the working group published a …
Research at NHGRI
The goal of our Caregiving Study is to understand how caregivers manage the demands of caring for a loved one with a long-term health condition and how social relationships affect caregivers' ability to cope.
… caregiving can have harmful effects on caregivers’ health and well-being. Our Caregiving Study explores the impact of caregiver stress over time and how social relationships affect their ability to cope with … coping, and physical health in caregiving. Translational Issues in Psychological Science . 2023; 9(2): 123-136. DOI: …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… to the Code, a patent may only be granted on "any new and useful process, machine, manufacture, or composition of … Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's research into the ethical, social, and legal implications of human genome …
News Release
NHGRI researchers and colleagues are calling for health disparities research that focuses on the microbiome.
… at NIH's National Human Genome Research Institute (NHGRI) and their colleagues* are calling for health disparities … health outcomes that impact certain groups of people - and the microbiome - the microorganisms that live in and on us -- are both influenced by people's environments and social interactions. As a result, the microbiome and health …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… Technological advances have made genetic and genomic tools faster, cheaper and more compatible with … used by law enforcement to investigate criminal acts. The legal system also uses genetic information to exonerate those … been convicted of crimes they did not commit. … Policy Issues …