Search Results
Facet (Page)
Refine Your Search
Audiences
Content Formats
Events
Sections
Divisions
Policy Issues
El uso de seres humanos en las investigaciones biomédicas, clÃnicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
… en Investigaciones ( Federal Policy for the Protection of Human Research Subjects ) o 'Regla Común'. Esta regulación … de biomuestras (" Workshop on the Release of Research Results to Participants in Biospecimen Studies "). El … para formar el Consorcio de Entrega de Resultados ( Return of Results Consortium ). Los investigadores del …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors.Â
… on (301) 402-4845 File an EEO complaint through the Office of Equity, Diversity, and Inclusion at … or fellow. … NHGRI Anti-Harassment Plan NIH Climate Survey Results - November 2019 General Facts of the Survey for NHGRI … Workforce Diversity October 23, 2019 NIH Anti-Harassment Policy and Videos Anti-Harassment Q&A … Too Many Seniors …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… information to exonerate those who have been convicted of crimes they did not commit. This page provides information … sample can then be taken from the suspect. The results of a comparison between that sample and the crime …  or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… by next Thanksgiving. I was remiss in making you aware of an important National Institutes of Health (NIH) milestone … opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … research process that can improve reproducibility of study results and promote reuse of high-value datasets for future …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance companies and … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … testing may be concerned about the privacy of their results and whether insurance companies could use a genetic …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, … For instance, the NIH Genomic Data Sharing (GDS) policy expects that researchers obtain consent when they plan … shared. Whether participants will receive any individual results from current or future studies using their samples or …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… to participate in the research needed for the development of new tests, therapies, and cures. This page provides an … upon employment by the military, and so genetic test results may affect one’s ability to access TRICARE … discrimination by employers and health insurers. … Policy Issues …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… As the field of genomics advances, genetic and genomic tests are becoming more common in, and out of, the clinic. Yet most genetic tests today are not … in 2010 the FDA announced plans to move away from a policy of "enforcement discretion" (see next section, "FDA …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… Genomics research is shaping the future of medicine. For these advances of this research to benefit everyone more equally and improve … as becoming research scientists, research participants and policy makers. It is important for everyone to be informed …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… Synthetic biology is a field of science that involves redesigning organisms for useful … and companies around the world are harnessing the power of nature to solve problems in medicine, manufacturing and … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies …