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- Ethical, Legal and Social Implications (ELSI) Research Program2
- Genomics-Enabled Learning Health Systems (gLHS)2
- Genome Technology Program2
- Impact of Genomic Variation on Function (IGVF) Consortium1
- Clinical Genome (ClinGen) Resource1
- Polygenic RIsk MEthods in Diverse populations (PRIMED) Consortium1
- NHGRI Genomic Data Science Analysis, Visualization and Informatics Lab-space (AnVIL)2
- Genomics Research to Elucidate the Genetics of Rare Diseases (GREGOR) Consortium1
- Developmental Genotype-Tissue Expression (dGTEx)1
- Multi-Omics for Health and Disease (Multi-Omics)1
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… Prabarna Ganguly, Ph.D. … A workshop led by Alaska Native people provides a path towards collaborative, … peoples in numerous datasets and analyses used to make health policy decisions. While issues of inclusion persist, …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… Board (IRB) training program for American Indians and Alaska Natives at the National Institutes of Health (NIH). IRBs are committees, at NIH and at other … Research Center. Dr. Villegas is an enrolled member of the Native Village of Afognak in Kodiak, Alaska. "I was focused …
About NHGRI
The Board of Scientific Counselors evaluates the NHGRI intramural research programs and provides periodic technical and scientific peer review.
… The Board of Scientific Counselors previews and evaluates the … review of the work of our research investigators. … The Board of Scientific Counselors previews and evaluates the … in the Division of Intramural Research (DIR). Board members meet, at the call of the chair, throughout the …
Clinical Research
The Institutional Review Board (IRB)Â is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… The Institutional Review Board (IRB) is responsible for protecting the rights and … is provided by a centralized NIH Institutional Review Board Office (IRBO) located within the Office of Human … system (requires NIH Login). … National Institutes of Health (NIH) Office of Human Research Protections NIH Ethics …
Health
The Family Health History Group connects stakeholders, researchers, and thought leaders to share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of family health history information.
… The Family Health History Group connects stakeholders, researchers and … potential solutions related to the collection of family health history information. Multi-disciplinary, volunteer members come from government, industry, health care, research, advocacy and policy backgrounds, and …
Health
Knowledge of your family health history can help you and your healthcare providers identify patterns of inheritance and risk factors.
… Knowledge of your family health history can help you and your healthcare providers … of inheritance and risk factors. … Modernizing family health history: achievable strategies to reduce … 24. … Researchers build a statistical model using family health history to improve disease risk assessment May 1, 2019 …
Health
Guidance on collecting your family health history information before visiting the doctor.
… Find out how learning your family's health history can help you discover your genomic heritage … General's Family History Initiative, the My Family Health Portrait  is a website that helps you create your own family health history. Using any computer, an Internet connection …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral … of the intersection of genomics, social determinants of health and health inequities specifically relating to the integration of …
For Patients and Families
FAQs about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics.
… about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics. … Health FAQs … FAQs about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics. ​​ ​ … …
Health
Information about genomics competencies, patient care, and related partnership and outreach activities at NHGRI.
… is growing and ever-changing, and it’s crucial for health professionals to have a firm understanding of genomics … and outreach activities. … Related Content … For Health Professionals … Information about genomics … related partnership and outreach activities at NHGRI. … Health …