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The Ethics Branch provides leadership, guidance and advice to NHGRI employees regarding ethical standards of conduct.
… The National Human Genome Research Institute (NHGRI) Office of Ethics assists NHGRI employees to adhere to the Standards of Ethical Conduct for Employees of the Executive Branch and the …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute.
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… Leonard Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the … Branch at the National Human Genome Research Institute. … standards of ethical conduct, human resources, conflicts of interest, …
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
… Benowitz … Four new grants from the National Institutes of Health will support research on the ethical, legal and social questions raised by advances in … of infectious diseases. The researchers will develop and conduct three pilot projects that study how genomic …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… … On Monday, January 29, 2018, the National Institutes of Health will hold a Reddit "Ask Me Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… The Centers of Excellence in ELSI Research bring investigators from … ways to address important new, or particularly persistent, ethical, legal, and social issues related to advances in … policy issues that arise in connection with the design and conduct of genetic and genomic research.  Genomic Healthcare …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… Most of the ethical discussions related to genome editing center around … whether or not germline editing should be permissible. As of 2014, there were about 40 countries that discouraged or … including 15 nations in Western Europe, because of ethical and safety concerns. 3  There is also an …
News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… technologies, genome sequencing carries the possibility of incidental or "secondary" findings that can reveal … states. Pediatricians, in particular, face complicated ethical questions about what information they should … and to whom, when genome sequencing uncovers signs of possible genetic risk for disease in patients who are too …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Societal Definitions, Beliefs and Norms Conceptions of Human Identity and Origins … Program Contact: Rene … Genomic Healthcare This research identifies and addresses ethical, legal, social and policy issues that arise for … about uses of genetic and genomic testing. Norms and standards to bring new genomic tests, including polygenic …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… Sample Applications and Summary Statements The purpose of the NIH Pathway to Independence Award (K99/R00) program is to facilitate a timely transition of outstanding postdoctoral researchers with a research … Policy Anya Prince 2015 Summary Statement Full Application Ethical, Legal, and Social Implications of Translational …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… a.m. - Welcome Co-chairs: Trey Ideker, Ph.D. , University of California San Diego Mark Craven, Ph.D. , University of Wisconsin Speaker: Eric Green, M.D., Ph.D. , Director, …   2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine …