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FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… the large number of resources available regarding the DMS Policy, where should I start? NIH resources regarding the DMS … and Sharing Scientific Data Does the DMS Policy apply to social and behavioral scientific research? Can qualitative data be “scientific data”? Yes, NIH-supported social and behavioral scientific research that results in the …
Talking Glossary of Genetic Terms
Race is a fluid concept used to group people according to various factors including, ancestral background and social identity.
… to various factors including, ancestral background and social identity. … Trait, Genetic Variation … Race is a social construct used to group people. Race was constructed … into groups often based on physical appearance, social factors and cultural backgrounds. … Race is a fluid …
Staff
Vence Bonham is the acting deputy director for NHGRI and an associate investigator in NHGRI's Social and Behavioral Research Branch.
… (NHGRI) within the Division of Intramural Research's Social and Behavioral Research Branch. He leads the Health … clinical settings. His research focuses primarily on the social implications of new genomic knowledge, particularly in … Communities of Color in the United States' Genetics Policy Conversation. Journal of Health Politics, Policy and …
Event
A social media campaign, organized by NHGRI and its partners, that focuses on healthcare provider genomics education.
… Research Institute and its partners are organizing a social media campaign from June 5 to June 9, 2023, that … … Healthcare Professionals' Genomics Education Week … A social media campaign, organized by NHGRI and its partners, … focuses on healthcare provider genomics education. … A social media campaign, organized by NHGRI and its partners, …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … sources. As a leader in genomics, including relevant policy development and implementation, the National Human … with a clear understanding of the ethical, legal and social implications of such sharing. This new policy will …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… career researchers September 7, 2023 NIH data management policy commits to making research results available | The … Research and the New NIH Data Management and Sharing (DMS) Policy Webinar May 23, 2023 Webinar: Educational Hub for …
Staff
Dr. Philip Shaw was an investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… phenotypes pertinent to ADHD based in the neuroimaging, social and behavioral sciences, 2) identifying the genomic … using tools from the neurobiological, psychological and social sciences. This will allow advancement beyond a … Given that children are embedded in multiple social contexts, whether families, schools, or local …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… to NHGRI data sharing policies. Providing consultation for policy or practice development. … Appointed Members Erin M. …
Administrative
NHGRI branch responsible for education and community involvement programs to increase understanding of genomics and its ethical, legal, and social issues.
… genomics and accompanying ethical, legal, and social issues. … ECIB's education programs include those to … understanding of genomics and its ethical, legal, and social issues. … NHGRI branch responsible for education and … understanding of genomics and its ethical, legal, and social issues. … Administrative …